This is the ongoing story of our five year old son's battle with stage 3 Rhabdomyosarcoma in his abdomen. He recently earned his wings and entered the kingdom of heaven. He is full and surruonded by God's glory. He is our little hero and an amazing example of the adversity that children can overcome. God is our Healer, now that medicine is done, GOD will begin. All the glory belongs to HIM
Monday, April 11, 2011
First cruise on the bike
Spring is in the air and life seems to have gotten a little lighter. Christian and I just got back from a ‘cruise’ to McDonalds with the windows down and the music blaring.It feels so good to forget for a moment and enjoy just being together. Christian amazed me again today with his understanding and patience for his disease. We were approaching the drive through and he asked me if we could instead go inside and play for a bit, just a few minutes he says. I explained to him that we couldn’t go in because his counts were very low and so it wasn’t safe for him to play were it might be dirty.So he smiles and says, “Ok will you let me know when my counts go high so that we can go back to McDonalds and play?”But then I had to stop the car before we went through the drive through so Christian could take off his jacket and show the ladies his batman shirt and cape as we drove through for our lunch! He is so cute.
Christian rode his bike around the block and we cleaned the yard – ahhhhhh life feels good with the sun on your back and a nice warm breeze on your face. Evelyn was happy to have inherited his bike helmet (even though she couldn’t quite figure out how to get it on!) Ryan is getting closer and closer to crawling- I think the gates will be up by the weekend. Life continues to roll forward and the kids continue to grow and learn before our eyes despite all that is going on under our roof.
I DON'T THINK THIS IS RIGHT!!!
Tomorrow we head back to the hospital for chemo #11. Only 32 treatments left to go. I cannot believe we are a quarter of the way through our treatment. One week from today we will be having Christians evaluation CT scan to determine how much the tumor has shrunk.There are so many good things that could come out of next weeks scan so we pray and pray that it shows only good things. If the tumor is small enough they will not have to do surgery to remove the remaining mass and we will begin radiation immediately. If the tumor has moved out of certain areas we will be able to stop his anti coagulants which means one less poke everyday. If the tumor is small enough he will be down graded to a stage two cancer instead of a stage three. If the tumor is not quite small enough to begin radiation they will have to do a surgery to remove the remaining tumor. This will mean a week or so in hospital followed by two weeks recovery at home then radiation will begin as soon as possible. It is important that the size of the tumor is as small as possible so that the amount of his abdomen to be radiated is limited.There WILL be some damage to his body from the radiation but the pro’s and con’s must be weighed and obviously getting rid of the cancer trumps all else.
Lord let your light shine!
So please pray for healing for Christian and patience for Chris and I. We need strength and wisdom to lead our family and our children. We need to be strong for our kids so they know we have their backs. Thank you to everybody who has supported our family and helped us to get as far as we have. Love and hugs to all
Today I am thankful for:
1. 1. Quite house and hot coffee (at the same time!)
2. 2. The feeling my body gets after a hard workout