Saturday, March 12, 2011

Two heparin, one dressing and a partridge in a pear tree.....

Daily Heparin Flush in the "noodles"

Some days are good, some days are bad and some days you just want to crawl into a hole and see what's going on somewhere else. Today was one of those days. The at home routine is slowly starting to work itself out. We have a calender hanging on the wall that hangs specifically to  remind us to give him all of his meds, changes his dressings, change his caps and go to chemo!  I think I need a calender so that I remember to brush my teeth in the morning and put on my underwear.

As I am writing this sad blog my father in law is telling about how he was sharing Christians story with the pharmacist at the local drug store.  Who then proceeds to tell my father in law about a single father over in bagdad who has five children and one with cancer. He is so poor that he can not afford to pay to treat his sick child and feed the others so he had to let his son succumb to cancer so that the others could survive. Do we really know what it is like to struggle? So as I am sitting here feeling sorry for myself for how difficult dressing change days are.......we are blessed over and over and over again.  It is still traumatic for Christian and a reminder to not wait until he is over-tired to do his changes! So for now dressing changes on saturday, centraline cap changes on sunday, heparin in his lines every second day and each day a blessing. 

Ryan catching a few winks whenever I can


  1. Hey there. I don't know if you remember me but we met at the childrens hospital in the oncology clinic. Just wanted to let you know that I'm still praying for you guys and Christian. If we can do anything to help, feel free to get ahold of me.

    Doug Phaneuf

  2. Thank you for sharing this journey with us, Megan. Keeping you all in my prayers.
    Nancy Friesen
    Jonah's Mom (1C)

  3. Brave boy! I remember having to clean Eva's gastrostomy site and it was so awful and uncomfortable for her but I had to keep reminding myself that it was so she would be ok. You are doing an awesome job Meg!

  4. Hi Chris and Megan. Thankyou for sharing your journey. I am sorry I couldn't look after Evelyn that afternoon with the three kids all dressed and waiting for me to take them to the pool. I will jump at the chance to help out the next time. I really admire your faith, trust, and family as a whole. I look forward to hearing good news about brave little Christian as time goes by. Islay Holmes (Lisa's Mom)