This is the ongoing story of our five year old son's battle with stage 3 Rhabdomyosarcoma in his abdomen. He recently earned his wings and entered the kingdom of heaven. He is full and surruonded by God's glory. He is our little hero and an amazing example of the adversity that children can overcome. God is our Healer, now that medicine is done, GOD will begin. All the glory belongs to HIM
Saturday, March 12, 2011
Two heparin, one dressing and a partridge in a pear tree.....
Daily Heparin Flush in the "noodles"
Some days are good, some days are bad and some days you just want to crawl into a hole and see what's going on somewhere else. Today was one of those days. The at home routine is slowly starting to work itself out. We have a calender hanging on the wall that hangs specifically to remind us to give him all of his meds, changes his dressings, change his caps and go to chemo! I think I need a calender so that I remember to brush my teeth in the morning and put on my underwear.
As I am writing this sad blog my father in law is telling about how he was sharing Christians story with the pharmacist at the local drug store. Who then proceeds to tell my father in law about a single father over in bagdad who has five children and one with cancer. He is so poor that he can not afford to pay to treat his sick child and feed the others so he had to let his son succumb to cancer so that the others could survive. Do we really know what it is like to struggle? So as I am sitting here feeling sorry for myself for how difficult dressing change days are.......we are blessed over and over and over again. It is still traumatic for Christian and a reminder to not wait until he is over-tired to do his changes! So for now dressing changes on saturday, centraline cap changes on sunday, heparin in his lines every second day and each day a blessing.