This is the ongoing story of our five year old son's battle with stage 3 Rhabdomyosarcoma in his abdomen. He recently earned his wings and entered the kingdom of heaven. He is full and surruonded by God's glory. He is our little hero and an amazing example of the adversity that children can overcome. God is our Healer, now that medicine is done, GOD will begin. All the glory belongs to HIM
Monday, March 28, 2011
Smashing of families
We have had a wonderful time this month with Norman and Margie in our home. It has been such a blessing to have so much help from our families. Christian and Evelyn have had a really good chance to bond with them and develop a trusting relationship. I have always thought it was such a special gift when you knew that somebody loved your kids as much as you did (if that’s possible!)I feel that anytime you can add people to the tally of 'people who truly love your children' - you are contributing to your kid's self esteem and confidence as they realize how special they are and how much their little lives matter. So this is a quick thank you to everybody who has spent time to get to know Christian, Evelyn and Ryan, especially over these past two months. Tonight we had some fantastic steak BBQ – by Norman – and even though it may not seem like much it helps us to have a feeling of normalcy when some days just don’t feel normal at all.
Jayden and Christian playing Super Mario in the HOT clinic
Speaking of special people, Chris and I are often amazed at the way the God brings people into our lives. You might not understand it at the time of meeting but it will at some point become obvious to us - His plan. This became quite apparent to us on one of our first days at the clinic, in fact I think it might have been our first time in the clinic, where Christian gets his 'small' chemotherapy. We were kind of sitting there in a daze not sure what to do when I hear a man say, “Are you the Crowell’s?” And I am thinking that word sure travels fast and he proceeds to tell us that his church has been praying for our family. So here is this man that I have never seen before saying he has been praying for Christian and I look down and there is a sweet little fuzzyheaded boy sitting in a wheelchair. He says this is my son, Jayden. I cannot believe that this man whom obviously also has a son sick with cancer has been thinking of and praying for us.
If you have read the previous blogs I have explained a little bit about Christians cancer, rhabdomysarrcoma, which is a very rare childhood cancer (less than 4% I believe) so it amounts to only around 200 cases a year in Canada. So because we are ‘newbies’ on the Oncology ward at the ACH you spend a lot of time asking people the same questions. What kind of cancer does your son/daughter have? What kind of treatment are you doing? How have their side effects been? How long since you were diagnosed? So I starting into the standard 20 questions of meeting a new parent on the ward and I ask Doug what kind of cancer Jayden has and he says a cancer very similar to the one Christian has. He tells me Jayden was diagnosed just before Christmas and that he is just a little older than Christian. He is the pastor at a local Airdrie church and Christian’s name ended up on his prayer list. And we ended up in the clinic on the same day at the same time. Talking about our two boys, almost the same age, similar type of cancer, same time and same town – this is no coincidence. God just wanted us to be friends. On Friday Norman is looking through the local paper to find a church that he wants to go to on Sunday and he points one out to Chris, “How about this one?” And I am sure you know the rest of the story – Doug’s church. God works in wondrous ways. So the Phaneuf family has found a place into our hearts and they inspire us with their uplifting spirit and gracious attitude. They are amazing family for thinking of others when they had so much of their own to deal with. We are blessed to have been smashed together with them and you truly never know how God is working in your life till you let Him lead.
Ryan - naturally cool!
One of Chris’ colleagues came over to the house early on in our debacle and brought us a special book about gratitude. It has a space to write each day a few things that you are thankful for. So from now on I will end my blog with a few things I am thankful for.
1.Christian’s excellent dance moves that he has been practicing for the upcoming kids dance
2.Ryan being such a good natured and relaxed baby
3. Evelyn doing her midnight jammie changes...they drive us crazy but we will remember it forever
Evan - natually nuts!
Nighty night and don't forget to register to become a possible bone marrow donor at www.onematch.ca. Thank you for honouring Christian's fight.