This is the ongoing story of our five year old son's battle with stage 3 Rhabdomyosarcoma in his abdomen. He recently earned his wings and entered the kingdom of heaven. He is full and surruonded by God's glory. He is our little hero and an amazing example of the adversity that children can overcome. God is our Healer, now that medicine is done, GOD will begin. All the glory belongs to HIM
Wednesday, January 9, 2013
CHRISTIAN AND GOLIATH
Keeping air in his lungs and food in his tummy
My sweet little boy, my fighter, one week ago somebody told
me that you only had days left to go, days left to hold and love on you. But
here you are my little man; you are rocking this world with your tenacity and
perseverance. You refuse to give up. Some people might say that you have fought
so long and hard, why not just let you go and be at peace. But you know what?
God has given you this fighting spirit and has given you this will to live. Our
heaven father has given you the ability to fight like Samson and David. He has
given you the heart of a lion and the courage of a mighty warrior.
Within the past week you definitely reached a point where
your dad and I wondered when you would be taken home. But each day your show us
bits of hope. You show us that God is listening to our prayers. Yesterday when
I was in the shower I dropped to my knees and told God how weary and tired we
were. How I didn’t have the energy to fight anymore. I asked for God to move so
that we could know He is in fact Lord over all of our circumstances. And true
to God’s glory you had a promising day yesterday. You had some poo (which means
your bowel obstruction is moving), you had some food, lots of drink and you
wanted to move. In fact I came back from having some supper to find you
desperately scraping your arms trying to get out of bed. You were convinced you
were getting out of bed. So you sat on the edge of your bed and let me rub your
back. Sweet, sweet Christian we have a ways to go but your fight encourages me
to keep trusting God. We asked you yesterday who was going to fix your tummy,
and you told us, “Jesus”. Then all on your own you told us He told you that,
You never know where your inspiration is going to come from
and you never know when God is going to whisper in your ear.Yesterday on your Facebook page
somebody posted about the song from Tenth Avenue North, “By your Side”. As I
write this blog I listen to the words and am intensely encouraged by the words
“Why are you
crying these days?
Why are you
trying to earn grace?
Why are you
crying? Let me lift up your face, just don’t turn away
Why are you
looking for love?
Why are you
still searching as if I am not enough?
To where will
you go? Tell me where will you run? To where will you run?
Cause I’ll be
by your side where every you fall
In the dead of
night whenever you call and please don’t fight these hands that are holding
you, my hands are holding you
Cause I, I
love you, I want you to know that I, I love you I’ll never let you go”
Your mommy and daddy have been ‘working’ so hard to ‘earn’
your healing, crying in desperation, wondering about our future. God is
reminding us that none of these things are required. God is telling us that He
is enough for us, just hang on to Him and onto His word. Regardless of what is
going on He is holding us; He is cradling all of us in his big hands. He is
holding us up and carrying us on his soft, gigantic shoulders. There is no need
to run around frantically looking for answers. God will provide everything that
we need because He loves us so desperately and “He will never let you go”.
Christian please remember how much God loves you, whatever happens to us, God’s
plans are so much grander that all we can imagine.
Ephesians 3: 20 Now to him who is able to do immeasurably more than all
we ask or imagine, according to his power that is at work within us.
My prayer requests today are that the copious amounts of
fluid in his body would be reabsorbed and alleviate the pressure on his lungs,
heart and vital organs. That his bowel adhesions would continue to release and
he would be able to eat food without ensuing pain. Please pray that God would
continue to minister to Chris, myself and our family in our dark hours. Please
lift up the Phaneuf family and continue to pray fervently for Jayden. That God
would move in their home and in Jayden’s body. Please pray for healing for
these amazing boys – that they would be raised up and that would be able to personally
glorify God in the land of the living.