This is the ongoing story of our five year old son's battle with stage 3 Rhabdomyosarcoma in his abdomen. He recently earned his wings and entered the kingdom of heaven. He is full and surruonded by God's glory. He is our little hero and an amazing example of the adversity that children can overcome. God is our Healer, now that medicine is done, GOD will begin. All the glory belongs to HIM
Thursday, February 16, 2012
Trying to sleep off the pain
Lift up your voice in praise and thanks – we are finished with Christian’s treatment! He soldiered through his second and last stem cell transplant this morning.He was quite sick (mostly from the preservatives that the stem cells are stored in) and it feels pretty horrible when the preservative gets excreted from his lungs(so the nurses tell us). But tonight he lays here in his bed – done. We have no more work to do but to help him heal and get strong. He is very uncomfortable and spends most of his time lying on his side with his face in a towel so he doesn’t have to swallow any spit. He is suffering from a lot of nausea, vomiting and sores in his mouth and throat. He is on a base rate of morphine and also has a pump to push when he is in too much pain. I am told the apex of his pain will come around day plus five so I pray that this day comes quickly and in between we can distract his pain and help him to have some hope that he won’t be like this forever. My prayer is that we get out of her by day +14 – a small miracle I am told.
Waiting for the days to get better
He lay in his hospital bed this afternoon and my heart broke into a million pieces, he looked so horribly defeated and broken. I tried to explain to him that things are going to get better – I promised he would feel good soon and we would go someplace fun. I broke into tears and he immediately put his skinny little arms around my neck to console me. Can I express anymore how much of a hero this little boy is to me? As I write he opens his mouth and whispers, “mommy – can I have a sucker?” He immediately falls back into his drug induced sleep. I feel so much better when he is sleeping as he seems calm and comfortable and I am hoping he doesn’t feel any pain, perhaps he is even dreaming of something great. When he is awake he finds some reprieve by looking on EBay to try and find Star Wars guys he doesn’t already have (an impossible feat!) and downloading movies and music from ITunes.
I am perpetually grateful for the children’s hospital and the oncology unit, the doctors who attend to Christian’s medical needs and the nurses who do it all. I am so thankful we can joke and laugh and make the best effort to enjoy our days here on unit 1. Theses people have become our family and I will truly miss them when our days are no longer all consumed by cancer. The nurses continue to amaze me (as I may have previously mentioned!!!) and I missed a few nurses the other day when I publicly acknowledged them – nurse Leslie, Lane (aka…how does this tube work?), Kathryn, Jen, Marsha and Sherry. It takes a special person to come into work everyday and care about each and every child on the unit. Thanks for reading.
He is happy to see Ryan - just doesn' t show it!!!!!