Hello sweet heart. Tonight I am in one of your favorite
places. I can feel and see you just about everywhere. I see a landmark and
imagine what you did and said, I see a person you loved and remember how you
sounded when you spoke to them and how you looked when you hugged them. I
remember your favorite places to go, foods to eat and the people you wanted to
be with. You loved playing fish with nanny Lou at the kitchen table, you loved
playing in your room at Nanny Marilyn’s house. I can see you sitting at your
little table in the living room eating your breakfast and watching cartoons.
You loved throwing rocks down at Victoria Park and walking along the beach at
Aunty Janice’s’ cottage. You loved the parks at bible hill and Victoria Park.
You loved playing with Aunty Judy in her backyard and you loved playing hockey
with your cousins over at Uncle Sandy’s house. As a baby you spent many hours
in Uncle Brent and Aunty Rhonda’s pool and playing ping-pong in their basement.
You are everywhere here in Truro and now you are nowhere. I sit here at the
computer and I am desperate for you. My longing for you is secret and the smile
I put on my face is a façade to cover the pain that emanates from my heart.
Some days I can keep myself busy enough to not have to miss you too much. But
here in Nova Scotia, where you heart lived, I can’t escape your beautiful smile
and your infectious, joyous ways. I love to remember the special way your affection
made me feel. You were the first person to introduce unconditional love to me. And remembering the times you spent here and
watching you love other people, remember the moments that filled your heart –
breaks mine. I want to feel that immense joy again. And in the still of the Nova
Scotia nights – with the stars so clear – and my mind so fragile I can’t help
but sit here and cry. Still to this day
I wonder how on earth this happened to us. I used to watch the commercials for
the children’s hospitals and see the bald little kids and felt pity for them. I
wondered whose child gets cancer? Not mine. Not yours. Wrong. I lay in my bed
in the middle of the night wide awake tormented by your last days. I cannot
stop playing them back.
Ryan enjoying the beach at the cottage |
Just about on a daily basis I ask God the question, Why? And
then I ask the question How? Why did this happen to our family? Why did you
have to suffer so intensely? I think back to some of your treatments and things
that happened to you in the hospital and I am filled with rage. No little
person should understand and know that depth of pain and hurt you experienced; or
the fear and the anxiety of not knowing what’s coming next. Begging and
screaming for me to not leave you when I want to go a get a quick cup of coffee
at the cafeteria. I wonder what horrors played in your mind when I walked
toward your hospital room door. What did you think was gong to happen to you
when I left? I knew that there was no boogie man around the corner, no painful
procedure on schedule for you. But the pain and fear that griped your mind in
that time of your treatment haunts me. I couldn’t protect you; I couldn’t
protect your soul and stop the panic of the unknown. I couldn’t help you. But I
loved you and held you tight. And I know you know that I loved you with you all
my heart, and all of my soul and to the bottom of my toes and to the top of tatooien
and around to the death start.
Enjoying the beaches of NS |
The answer to why is
that there is no answer and no explanation. And the question
How? How do I survive? How do I continue to wake up each
morning and move my feet? How I do I look at my other children and not see
their brothers face? How do I watch them interact and not wonder how life would
be different if Evy, Ryan and Josh’s big brother were still around? How do I
explain to other people the lingering and shocking pain that still exists in my
soul a year and a half later? The smile on my face covers the truth. The phrase about my other children giving me
purpose and “something to wake up for” is very true. But the pain is still the same,
which never changes deep in my soul. I
watch your cousins and imagine what you would be doing with them. I imagine you
growing taller and stronger and braver. I imagine you and Daniel playing ball
hockey on the driveway for hours. I imagine you and daddy and uncle Kenny
hitting the golf course. I imagine you and aunty Paula playing ball. I imagine
you and papa cutting the lawn and worst of all I imagine you and your brothers
and sister playing together at the beach. You four together are the perfect
team. You are the perfect leader to our little squad. But then I am reminded
that life isn’t perfect. It is far from perfect – its down right miserable some
days. And my goal is to reduce the amount of yuck I feel. At the end of the day
I ask myself, “Whose life did I make better today? Did my kids know that I
loved them with all my heart? Did I squeeze each one of them and tickle their
little tummies? Did I honor you Christian?” The purpose of my life is not to
seek out this phenomenal joy that I am missing in you; but to bring joy to
those around me. And if I can’t bring somebody joy then can I serve in God’s
name? To make somebody else’s life just a tiny bit better. And maybe, just
maybe some of the joy will stick to me and work its way into my soul like
osmosis. The concentration of joy is small inside of me. But if I can help
create joy around me then perhaps it will begin to penetrate my skin, my bones,
my soul and all things will even out.
The other night Evelyn had a dream about you. I know you
spoke to her because she is generally very vague and “fairy-tale” like with her
explanations of her dreams. She told daddy that she had “the most amazing
dream! She said you told her that the day after you died you were alive again
and that everything was ok and that you were happy in heaven. You said that
heaven was amazing. She said you told her that everything you touched turned to
Gold. I hold onto these pictures in my mind. I know you are well taken care of
and I wait for you in my sleep. I love
you.
The Crowell boys - forever |
I love the photo of the Crowell boys. I love that you are still posting on here and sharing your journey. I think of you often and pray that you are healing, and that you are finding happy moments. Thank you for the privilege of sharing this with you xx
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